This month we are excited to welcome Kate Kostolansky, a mom, advocate, and Founder of Brave Bears Club! Kate lives with her husband and two children — Charlotte and Theodore. When Charlotte was diagnosed with Infantile Spasms, Kate quickly realized how isolating, confusing, and overwhelming a rare epilepsy diagnosis can be. Determined to shed light on this condition and create resources that didn’t exist for her own family, she leaned into her “mama bear” instincts. What began as one mother’s late-night notes has grown into a movement helping families across the country feel less alone.

Objectives:

1. Discuss comfort and coping measures from a parent's perspective.

2. Provide child life professionals with insight into their role from a parent's perspective.

3. Share details about Brave Bears Club and how your hospital or practice can get involved!

This webinar will be recorded. If you are not able to attend live, you…